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Post by kevinkat78 on Aug 10, 2007 19:35:56 GMT -5
I wanted to ask every one to pray for my Grand Daughter and put her on your prayer list. Her name is Charity Brooke Johnson and she's 19 months old. She had a Quarter size tumor removed on Monday. The doctor did a great job removing it and she only had to stay in the hospital 3 days when they thought it would be a week. It turns out to be cancer and a real killer. She will have to have Chemo-therapy and my go to St. Judes. In Memphis. Read the following to see what she has and please pray for her. Thanks!
Brain Tumor: Atypical Teratoid / Rhabdoid Tumor (ATRT)
Alternative Names: ATRT
Definition
This rare high-grade tumor occurs most commonly in children younger than 2. It is generally found in the cerebellum which is the lower back part of the brain that controls balance. These tumors tend to be aggressive and frequently spread through the central nervous system.
Incidence
This diagnosis has been classified only in the last three to five years the tumor is a subset of medulloblastomas. They occur in about 1-2 percent of children with brain tumors.
Survival Rates
Even after surgery and chemotherapy treatment the survival rate for children younger than 3 at diagnosis is less than 10 percent. It appears that older children when treated with chemotherapy and radiation therapy after surgery do somewhat better long-term nearing 70 percent.
Treatment Strategies
Treatment generally involves surgical removal of the tumor followed by chemotherapy. Radiation therapy may be considered depending on the age of the child and whether the tumor has recurred.
Current Research
New radiation techniques that minimize damage to healthy tissue that surrounds brain tumor tissue are under investigation.
Scientists continue to study chromosomal abnormalities genes and proteins that may have a role in the development and metastasis (spread to other parts of the central nervous system) of pediatric brain tumors.
Clinical trials are underway to develop chemotherapy drugs effective against this tumor.
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Post by CatDaddy on Aug 10, 2007 20:48:02 GMT -5
You've got mine!
-D
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Post by MyBlueHeaven on Aug 10, 2007 21:51:16 GMT -5
I most definately will add her to my prayers each day and will put her on my church's prayer list. Keep faith KK78. This summer I witnessed a teenager, who was diagnosed terminal in the spring, reevaluted as cancer-free. Miracles do happen.
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Post by BlueCat on Aug 11, 2007 8:55:39 GMT -5
Done KevinKat. May God heal her and bless her, and give you all strength in the coming days.
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Post by kevinkat78 on Aug 11, 2007 14:26:32 GMT -5
Thanks Everyone!
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Post by lexblue on Aug 14, 2007 4:46:59 GMT -5
Kevin,
I have just read this today.
God Bless.
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Post by TheSpectre on Aug 14, 2007 7:57:58 GMT -5
Our prayers are with you and your family. I pray God just holds you grand daughter in his hands.
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Post by Administrator on Aug 16, 2007 6:38:28 GMT -5
Just now seen. Prayers sent to you and yours bro.
Sorry for the delay.
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Post by kevinkat78 on Sept 4, 2007 16:45:09 GMT -5
Thanks guys! Hey guys if anyone is interested my Daughter in law has set up a web site for my Grand daughter. Several are reading it but few are signing in on the guest book. If you feel you would like to please visit and sign in. You can also read the daily updates by the mom and have it send you a time when updates are made. Be sure to say you are a friend of Kevin's. They will remain in Memphis for 6 to 8 months. She had her first Chemo today. www.caringbridge.org/visit/brookjohnson |
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Post by Administrator on Sept 4, 2007 21:59:37 GMT -5
We're filling it up bro. Thoughts and prayers continue.  |
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Post by CatDaddy on Sept 4, 2007 22:18:22 GMT -5
Thanks guys! Hey guys if anyone is interested my Daughter in law has set up a web site for my Grand daughter. Several are reading it but few are signing in on the guest book. If you feel you would like to please visit and sign in. You can also read the daily updates by the mom and have it send you a time when updates are made. Be sure to say you are a friend of Kevin's. They will remain in Memphis for 6 to 8 months. She had her first Chemo today. www.caringbridge.org/visit/brookjohnsonMe, the wife and our daughter signed it Kevin.. Our thoughts, prayers and best wishes are with Brook and the rest of your family.... Stay strong, keep the faith, keep ;D -D |
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Post by kevinkat78 on Sept 5, 2007 12:35:05 GMT -5
:)Thanks all of you. My wife was told as soon as I posted this last night on 8 UK forums. She went on line last night and almost fell out of her chair. She said man you got a lot of people to visit and sign. She told our son this morning that a bunch of Kevin's UK friends have sure come through for the baby. I was very proud. Thanks a lot guys.
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Post by CatDaddy on Sept 5, 2007 18:54:57 GMT -5
Our pleasure and the least we could do.. Be sure and don't hesitate to let us know if you need anything else!
Oh and please, keep us informed....
-D
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Post by Administrator on Sept 5, 2007 23:41:57 GMT -5
:)Thanks all of you. My wife was told as soon as I posted this last night on 8 UK forums. She went on line last night and almost fell out of her chair. She said man you got a lot of people to visit and sign. She told our son this morning that a bunch of Kevin's UK friends have sure come through for the baby. I was very proud. Thanks a lot guys. Anything we can do brother....you just let us know. |
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